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Palliative Care Toolbox
Palliative care aims to improve a person's quality of life through improved symptom management while addressing psychosocial, emotional and spiritual issues. It is care that is appropriate at all stages of a person's illness. An interdisciplinary care team may include your family physician, non palliative specialist physicians, palliative care physician or nurse practitioner, social workers, dietitians, nurses, spiritual care workers and other health professionals (Cancer Care Ontario, 2013).
STEP 1: IDENTIFY
Identifying palliative care needs earlier in the course of disease significantly contributes to positive patient, family and system outcomes. Developed by the Ontario Palliative Care Network, Tools to Support Earlier Identification for Palliative Care, supports providers and system-level leadership in earlier identification of patients who would benefit from palliative care.
Surprise Question: “Would you be surprised if this person were to die in the next year?”
General indicators of decline: deterioration, advanced disease, decreased response to treatment, choice for no further disease modifying treatment
Disease specific indicators of decline
STEP 2: ASSESS
Assess patient and family’s current and future needs across all domains of care (i.e. disease management, physical, psychosocial, spiritual, practical, grief/loss, goals of care, end of life care) using validated screening tools, and through an in depth history, physical exam and relevant laboratory/imaging tests. Type and timeliness of assessment will depend on severity, interference with life, urgency and complexity of issues identified.
1. Regularly screen for distress and other needs using validated screening tools. It is recommended to complete these tools with every encounter, if possible.
- Palliative Performance Scales (PPS) - A reliable and valid tool to assess and quickly describe a patients functional performance, can be used to prognosticate, plan for care and communicate status to other providers.
- Edmonton Symptom Assessment System (ESAS) - A valid and reliable assessment tool to screen for the intensity of nine common symptoms experienced by cancer patients: pain, tiredness, nausea, depression, anxiety, drowsiness, appetite, wellbeing and shortness of breath. The score guides further focused assessment and your symptom management.
- Patient Reported Functional Status (PRFS) - Functional status helps to assess the disease progression and how it may be affecting the daily living abilities of the patient.
2. Use the results of screening to prompt further discussions, including critical conversations about a person’s illness understanding, their values and beliefs, and their goals and wishes of future care. Be sure to record goals of care/advance care planning discussions in the medical record. These conversations are iterative and should be revisited regularly.
- Advance Care Planning (Speak Up Campaign)
- Start the conversation (Advance Care Planning Conversation Guide: Clinician Primer)
- Encourage communication of goals and wishes (Ontario workbook - PDF (817 KB)
- Ontario Resources
- Engaging in Illness Understanding and Goals of Care Conversations
- Article: Discussing Goals of Care
- Document the decision-making process
- Obtaining Consent (to deliver, withhold or withdraw treatment)
STEP 3: PLAN AND MANAGE
Plan and collaborate ongoing care to address needs identified during assessment. This includes prompt management of symptoms and coordination with other care providers.
Symptom Management Guides:
Cancer Care Ontario's Symptom Management Guides can help healthcare professionals assess and appropriately manage a patient's cancer-related symptoms based on their ESAS score severity. Please visit the Cancer Care Ontario website to view the online toolbox. Also available are downloadable pocket guides, algorithms for each symptom.
Hospice Palliative Care Symptom Guidelines (Fraser Health Authority)
Still Need Help?
As a primary care provider you will participate as a member of the primary level palliative care team. The majority of patient care can be manged by the primary level care team with specialist support as needed (See MH LHIN Model of Hospice Palliative Care). If patient/family needs are more complex or support is needed, consider the role of secondary level palliative care specialists (i.e. consultation, collaborative care/shared care, direct care).